I have been suffering from Crohn’s disease for just short of 40 years. The initial diagnosis, at the age of 22, was irritable bowel syndrome (IBS) but subsequently changed to IBD after further tests.
Since diagnosis I have undergone emergency surgery for a perforated bowel, the removal of a stricture/temporary ileostomy and the subsequent reversal.
Since 2011 I have been in clinical remission but the loss of my terminal ileum has left me suffering from severe bile acid malabsorption (BAM).
My main medications have been prednisolone (nearly 20 years), followed by a long period on azathioprine. I am currently on no Crohn’s medication at all.
During my “Crohn’s career” I have lost very little time off of work, except for surgery. I am passionate about taking an active role in managing my treatment and getting the best out of the NHS.
I am currently writing a book about my experience of managing Crohn's disease.