Please note that IBD Relief Ltd is now a subsidiary of Motilent Limited. We are Motilent Limited, registered in England and Wales under company number 08730130 and with a registered office and main trading address at Beyond Aldgate Tower, 2 Leman Street, London, United Kingdom, E1 8FA.
This privacy notice will inform you as to how we look after your personal data when you visit our website ibdrelief.com ('Website') and tells you about your privacy rights and how the law protects you.
Motilent Limited and, with respect to certain service specific enquiries or relationships, its subsidiary IBD Relief Ltd, ('we', 'us' or 'our') are the controllers and responsible for your personal data. We respect your privacy and are committed to protecting your personal data. We strive to ensure that we are clear about how we will use the personal data that we collect. We process personal data in accordance with the UK General Data Protection Regulation (GDPR), Data Protection Act 2018, Privacy and Electronic Communications Regulations 2003 (as amended) and other applicable laws that regulate protection and privacy of your personal data, each as amended from time to time (the 'data protection laws').
This privacy notice aims to give you information on how wecollect and process your personal data through your use of the Website, including any data you may provide where you register via the Website and make use of any of the services we offer, including our online educational courses.
It is important that you read this privacy notice together with any other privacy notices or fair processing notices we may provide on specific occasions when we are collecting or processing personal data about you so that you are fully aware of how and why we are using your data. This privacy notice supplements other notices and privacy policies and is not intended to override them.
If you have any questions about this privacy notice or our privacy practices, please contact our data privacy manager via email at dpo@motilent.co.uk.
You have the right to make a complaint at any time to the Information Commissioner's Office (ICO), the UK regulator for data protection issues (www.ico.org.uk). We would, however, appreciate the chance to deal with your concerns before you approach the ICO, so please contact us in the first instance.
We keep our privacy notice under regular review. It is important that you check for updates to this privacy notice each time you use the Website. Historic versions can be obtained by contacting us.
It is important that the personal data we hold about you is accurate and current. Please keep us informed if your personal data changes during your relationship with us.
Personal data, or personal information, means any information about an individual from which that person can be identified. It does not include data where the identity has been removed (anonymous data).
We may collect, use, store and transfer different kinds of personal data about you which we have grouped together as follows:
We also collect, use and share Aggregated Data such as statistical or demographic data for any purpose. Aggregated Data could be derived from your personal data but is not considered personal data in law as this data will not directly or indirectly reveal your identity. For example, we may aggregate your Usage Data to calculate the percentage of users accessing a specific Website feature. However, if we combine or connect Aggregated Data with your personal data so that it can directly or indirectly identify you, we treat the combined data as personal data which will be used in accordance with this privacy notice.
Due to the nature of the services we provide, it is necessary for us to collect Special Categories of Personal Data about you (this includes information about your health, details about your race or ethnicity, religious or philosophical beliefs, sex life, sexual orientation, political opinions, trade union membership, information about your health, and genetic and biometric data) but only where this is strictly necessary for the purposes of providing you with our services. We do not collect any information about criminal convictions and offences.
Please note that where we need to collect personal data from you (either as required by law or to enable us to provide services to you) and you fail to provide such data when requested, we may not be able to provide you with the relevant services.
A child is any person under the age of 18. The Website is accessible to both children and adults. We will therefore collect personal data relating to children who use the Website and the services we offer.
We aim to protect and support children's health and wellbeing and recognise the role of parents in protecting and promoting the best interests of any child who uses the Website. Our aim is to ensure that the Website and the services accessed by children are appropriate for their use and meet their development needs. We need to process children's personal data to help achieve this.
Only children over the age of 13 and who are competent to provide consent are legally able to provide their own consent to the processing of their personal data. If a child is under this age, or above this age but not considered competent to provide consent, we must legally obtain the consent of their parent or the person who has parental responsibility for the child, to the processing of the child's personal data. Verification of the child's age and of the identity of the adult providing consent on behalf of the child will be required.
Where a child has signed up to use of the Website or our services, we will send email communications (such as our newsletter) and surveys to the child's parent or person with parental responsibility if consent to this has been provided.
Please note that the Website may include links to third-party websites, plug-ins and applications. Clicking on those links or enabling those connections may allow third parties to collect or share data about you. We do not control these third-party websites and are not responsible for their privacy statements. We encourage you to read the privacy notice of every third party website you visit.
We use different methods to collect data from and about you including:
Method | Type(s) of personal data | Examples of data collection |
Direct interactions | Identity Data Contact Data Profile Data Usage Data Marketing and Communications Data | Registering with us via our Website. Creating an online profile on our Website. Request that we provide a service to you. Participate in our e-learning courses. Subscribing to receive marketing communications. Completing a survey on the Website. Give us feedback or otherwise contacting us. |
Automated technologies or interactions | Technical Data Usage Data | Data automatically collected as you use the Website, including data about your equipment (including your phone or other equivalent device), browsing actions and patterns. We collect this data by using cookies and similar technologies. We may also receive Technical Data about you if you visit other websites employing our cookies. |
Third party partners | Identity Data Contact Data Health Data Profile Data Usage Data | We may receive Personal Data from:
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We will only use your personal data when the applicable data protection laws allows us to. Most commonly, we will use your personal data in the following circumstances:
Shared data provided to us is viewable by other members of the Website who are signed into their account through profiles and aggregated reports. This may include profile name, personal bio, any comments left on our website, location, hospital, age, disease, medication taken, surgery you've had, type of IBD. These may be viewable on your profile or in comments left. Some of this information is also available to be viewed by non-members who use the website. Since we are a public internet community, by using our website and our services you accept that any information that you add through free text (such as in article comments or in your personal biography) or images becomes shared data.
Set out below is a description of all the ways we plan to use your personal data, and which of the legal bases we rely on to do so.
We may process your personal data for more than one lawful ground depending on the specific purpose for which we are using your data. Please contact us if you need details about the specific legal ground we are relying on to process your personal data where more than one ground has been set out in the table below.
Purpose/Activity | Type of data | Lawful basis for processing including basis of legitimate interest |
To register you on the Website and create your online profile with us. | Identity Data Contact Data Usage Data | Performance of a contract with you. Necessary for our legitimate interests. |
To process and deliver your request for educational services, including our e-learning courses | Identity Data Contact Data Profile Data | Performance of a contract with you. Necessary for our legitimate interests. |
Health Data | You have provided your explicit consent. | |
In circumstances where you have chosen not to register via the Website, but use our educational services, the Website will capture certain details about you through the use of cookies. For example, we will be able to track which courses you have completed and any information, including health data, you have inputted during completion of the course(s). | Technical Data Usage Data | Necessary for our legitimate interests. |
Health Data | You have provided your explicit consent. | |
To manage our relationship with you which will include:
| Identity Data Contact Data Profile Data Marketing and Communications Data | Performance of a contract with you. Necessary to comply with a legal obligation. Necessary for our legitimate interests. You have provided your explicit consent. |
To administerand protect our business and the Website (including troubleshooting, data analysis, testing, system maintenance, support, reporting and hosting of data) | Identity Data Contact Data Technical Data | Necessary for our legitimate interests. Necessary to comply with a legal obligation. |
To deliver relevant Website content to you. To grow our business by measuring or understanding the effectiveness of the advertising we provide to you and by studying our customers' use of our services. | Identity Data Contact Data Profile Data Usage Data Marketing and Communications Data Technical Data | Necessary for our legitimate interests. |
To use data analytics to improve the Website, services, marketing, client relationships and experiences | Technical Data Usage Data | Necessary for our legitimate interests. |
Where you have been referred to the Website and use of our services by a healthcare professional, we will generate a code for the healthcare professional to supply to you. You may then input the code into our Website to gain access to our e-learning courses. The referring healthcare professional will be provided with information about your activities on the Website, including the e-learning courses you have accessed and completed. | Identity Data Contact Data Technical Data Profile Data | Performance of a contract with you. Necessary for our legitimate interests. |
Health Data | You have provided your explicit consent. | |
To make suggestions and recommendations to you about goods or services that may be of interest to you. We will not contact children for this purpose without explicit consent from their parent or other person with parental responsibility, but we may contact a child's parent or person with parental responsibility for this purpose if they consent to this. | Identity Data Contact Data Technical Data Usage Data Profile Data Marketing and Communications Data | Necessary for our legitimate interests. You have provided your explicit consent. |
For research and statistical purposes, and for referencing in academic journals and articles. [Where we use this personal data, we ensure that we do not identify specific users or their data.] | Profile Data Health Data | You have provided your explicit consent. |
To work with third party partners to improve our goods and services offering and to develop and commercialise additional goods and services. | Identity Data Contact Data Technical Data Usage Data Profile Data Marketing and Communications Data | Necessary for our legitimate interests. You have provided your explicit consent. |
Where applicable, you can ask us to stop sending you marketing messages at any time by: (i) by following the opt-out links on any marketing message sent to you; or (ii) by contacting us at any time.
Where you opt out of receiving these marketing messages, this will not apply to personal data provided to us as a result of any services you have purchased from us, or communications relating to a service experience.
We will only use your personal data for the purposes for which we collected it, unless we reasonably consider that we need to use it for another reason and that reason is compatible with the original purpose. If you wish to get an explanation as to how the processing for the new purpose is compatible with the original purpose, please contact us.
If we need to use your personal data for an unrelated purpose, we will notify you and we will explain the legal basis which allows us to do so.
Other than as expressly set out in this privacy notice or as otherwise permitted under applicable data protection law, we will not share, sell or distribute any of the personal data you provide to us without your consent.
We may share your personal data with third parties under this privacy notice, for the purposes set out in the table above, in the following circumstances:
We require all third parties to respect the security of your personal data and to treat it in accordance with the law. Unless you have otherwise consented to such use, we do not allow our third-party service providers, including artists or their agents, to use your personal data for their own purposes and we otherwise only permit them to process your personal data for specified purposes and in accordance with our instructions.
The personal data that we collect from you may be transferred to, and stored in United Kingdom, countries of the European Economic Area (EEA) and the United States as part of the provision of our IT systems and data analysis services or otherwise for the provision of the Website. Our IT and back-office service providers who act as our data processors may use IT equipment located in the United States and other countries outside of the EEA to hold your data.
In order to safeguard your personal data, we will only permit such a transfer of your data outside the UK and/or the EEA under a contract or another appropriate mechanism which is authorised under the applicable data protection laws. This is to make sure that your personal data is safeguarded in accordance with the same legal standards that apply to us when we are handling your personal data in the UK and EEA.
We employ appropriate technological and operational security measures to protect personal data we hold against any unauthorised access, any unlawful processing or loss. We have procedures in place to deal with any suspected personal data breach and we will notify you and any applicable data privacy regulator of a personal data breach where we are required to do so under applicable data protection laws.
Data transmission over the internet is not 100% secure, and although we employ appropriate technological and organisational security measures to protect your data from unauthorised access we cannot guarantee the security of any data sent over the internet or by public communications services.
We will only retain your personal data for as long as is reasonably necessary to fulfil the purposes we collected it for. This includes for the purposes of satisfying any legal, regulatory, tax, accounting or reporting requirements. We may retain your personal data for a longer period in the event of a complaint or if we reasonably believe there is a prospect of litigation in respect to our relationship with you.
By law we have to keep basic information about our customers (including Contact and Identity Transaction Data) for six years after they cease being customers for tax purposes. Personal data that we no longer need to hold is securely disposed of and/or anonymised, so you can no longer be identified from it.
In some circumstances we will anonymise your personal data (so that it can no longer be associated with you) for research, statistical or other purposes, in which case we may use this information indefinitely without further notice to you.
Under certain circumstances, you have rights under applicable data protection laws in relation to your personal data. If you wish to exercise any of these rights please contact us.
You will not normally have to pay a fee to access your personal data (or to exercise any of the other rights). However, we may charge a reasonable fee (or refuse to comply with your request) if your request is clearly unfounded, repetitive or excessive.
We may need to request specific information from you to help us confirm your identity and ensure your right to access your personal data (or to exercise any of your other rights). This is a security measure to ensure that personal data is not disclosed to any person who has no right to receive it. We may also contact you to ask you for further information in relation to your request to speed up our response.
We try to respond to all legitimate requests within one month. Occasionally it could take us longer than a month if your request is particularly complex or you have made a number of requests, in which case we will keep you updated regarding these timings.
Your legal rights:
Request access to your personal data (commonly known as a "data subject access request"). This enables you to receive a copy of the personal data we hold about you and to check that we are lawfully processing it.
Request correction of the personal data that we hold about you. This enables you to have any incomplete or inaccurate data we hold about you corrected, though we may need to verify the accuracy of the new data you provide to us.
Request erasure of your personal data. This enables you to ask us to delete or remove personal data where there is no good reason for us continuing to process it. You also have the right to ask us to delete or remove your personal data where you have successfully exercised your right to object to processing (see below), where we may have processed your information unlawfully or where we are required to erase your personal data to comply with local law. If a child's parent or person with parental responsibility for that child requests the erasure of that child's personal data we will always consider the wishes of a competent child before accepting the request. We will always consider the child's best interests when any request for erasure of their personal data is made.
Object to processing of your personal data where we are relying on a legitimate interest (or those of a third party) and there is something about your particular situation which makes you want to object to processing on this ground as you feel it impacts on your fundamental rights and freedoms. You also have the right to object where we are processing your personal data for direct marketing purposes. In some cases, we may demonstrate that we have compelling legitimate grounds to process your information which override your rights and freedoms.
Request restriction of processing of your personal data. This enables you to ask us to suspend the processing of your personal data if: (i) you want us to establish the accuracy of personal data; (ii) where our use of your personal data is unlawful but you do not want us to erase it; (iii) were you need us to hold the personal data even if we no longer require it, as you need it to establish, exercise or defend legal claims; or (iv) you have objected to our use of your personal data but we need to verify whether we have overriding legitimate grounds to use it.
Request the transfer of your personal data to you or to a third party. We will provide to you, or a third party you have chosen, your personal data in a structured, commonly used, machine-readable format. Note that this right only applies to automated information which you initially provided consent for us to use or where we used the information to perform a contract with you.
Withdraw consent at any time where we are relying on consent to process your personal data. However, this will not affect the lawfulness of any processing carried out before you withdraw your consent. If you withdraw your consent, we may not be able to provide certain services to you. We will advise you if this is the case at the time you withdraw your consent.
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Last updated: 12th February 2025
