Privacy Policy

1. Who is responsible for managing my information?

This website is owned and maintained by IBD Relief Ltd (“we” or “us”). We are responsible for the collection and proper management of any personal information you submit.

We will keep your personal details secure and use the information you provide consistently with applicable privacy and data protection laws and the terms of this Privacy Policy.

2. What information do we collect?

Some of the information we collect as part of the sign up process, and during the process of using the website, includes shared data and restricted data:

Shared data

  • Contact details ‐ location (postal code, town/city and country) and social media accounts
  • Personal details ‐ such as your name, age, gender/sex
  • Details about your health condition ‐ such as symptoms, diagnosis date, your diagnosis, details of surgeries, details of treatments
  • Biographical information ‐ such as any story you provide to us, photographs, status updates on your account
  • Survey responses ‐ individual responses, aggregated responses
  • Other information ‐ such as information shared by you in article comment boxes, relationship connections you make via your profile on the site
  • Site usage statistics

Restricted data

  • Contact details - your email address, phone number, full postal address
  • Personal details - your date of birth
  • Password ‐ the password you create to access your account
  • Private messages sent and received via the website

3. How do we use your information?

Anyone signing up to the website should expect that any data they provide (except restricted data) will be shared with other users of the website (including members of the general public) and IBD Relief’s partners. Examples of our partners include (but are not limited to) pharmaceutical companies, IBD charities, research institutions, medical device companies.

There are instances where both shared data and restricted data may be used. These include, but are not limited to:

  • Internal use for research, maintenance and operation of the website 
  • In the case of an emergency (or other such circumstance) that we determine requires a member of the management team to directly contact a member
  • Where required by law or to comply with legal process
  • If we go through a business transition, such as a merger, acquisition by another organisation, or sale of all or a portion of its assets, the data might be among the assets transferred. Members will be notified of any such change in ownership or control of personal information.

Shared data

Shared data provided to us is viewable by other members of the website who are signed into their account through profiles and aggregated reports. Some of this information is also available to be viewed by non-members who use the website.

There are different levels of privacy settings available to members in their account settings. These privacy settings allow users to make public different amounts of their shared data.

They include:

  • Anyone including search engines (your profile may appear in search results)
  • Anyone (public) - viewable to members and non-members who are viewing the website
  • Only members - only people with an IBDrelief account
  • Only me (private)

Members also have the option of completing surveys. These survey results are analysed and the anonymised data may be displayed on the website and/or shared/or sold to partners. Completing these surveys is completely optional.

IBDrelief is an public internet community and members accept that any information added through free text (such as in article comments or in their personal biography) or images becomes shared data.

Restricted data

Restricted data is not automatically shared with, sold to, or displayed for other members or partners. Instances where restricted data may be used include, but are not limited to:

  • If a member provides a date of birth, the member’s current age will be viewable in their profile
  • If a Member agrees to participate in a media interview we will share the contact information the member provides (i.e. name, email, telephone) with the reporter for the purpose of conducting an interview
  • If a Member makes a request we may use restricted data for the purpose of fulfilling the request. Examples include requesting to receive the company newsletter via email, requesting an email response from the IBD Relief Ltd support team, requesting a product to be mailed to their residence

4. When can we contact you in the future?

We would like to send you information about our own products and services, as well as those of selected third parties. We may do this by email unless you have told us that you do not wish to be contacted in this way. We will always ask you to confirm in advance that you are happy for us to allow third parties to contact you by email.

If you would like to change any of your preferences relating to the way in which we may use your information for direct marketing, then please update your user preferences or send an email to

5. How long will we hold your information for?

We have a system of retention periods in place to ensure that your information is only stored whilst it is required for the relevant purposes or to meet legal requirements. Where your information is no longer required, we will ensure it is disposed of in a secure manner.

6. Cookies

Our website uses cookies to distinguish you from other users of our website. This helps us to provide you with a good experience when you browse our website and also allows us to improve our site. For detailed information on the cookies we use and the purposes for which we use them see our Cookies Policy.

7. How can you access and update your information?

You have the right to request a copy of the information that we hold about you. If you would like a copy of some or all of your personal information, please email to us at the address below. Please note that we may charge a small administrative fee for the provision of this information.

We want to make sure that your personal information is accurate and up to date. You may ask us to correct or remove information you think is inaccurate.

8. Does the policy apply to linked websites?

Our website contains links to other websites. This privacy policy only applies to this website, so when you link to other websites you should read their own privacy policies.

9. How do we update this privacy policy?

We keep our privacy policy under regular review and we will place any updates on our webpage. This privacy policy was last updated on 18 February 2016.

10. Who can you contact if you have queries about this privacy policy?

Please contact us if you have any questions about our privacy policy or information we hold about you.

By email: 

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