IBD stories

An important part of IBDrelief is about bringing together the experiences of people who are living with IBD so others can learn from them.

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22 stories

Tina Aswani Omprakash - My IBD Story Tina was diagnosed with Crohn's disease in January 2006. She has a family history of Crohn's and had a colonoscopy as a preventative measure. Symptoms started five months in to diagnosis. In her IBD story, Tina describes what IBD awareness means to a South Asian American woman with Crohn’s.
Maizey Nunn - My IBD Story Maizey was diagnosed with Crohn's disease at 17 years old, after experiencing a lot of stomach pain, many urgent trips to the bathroom and major fatigue. Her symptoms caused Maizey to miss both school and work and the pain was unbearable.
Sahara Fleetwood-Beresford - My IBD Story Sahara was diagnosed with ulcerative colitis in 2007. She runs the #IBDSuperHeroes awareness campaign and Facebook group, and sits on the board for UK charity Cure Crohn’s Colitis. Sahara also works with healthcare companies as an IBD Patient Expert.
Glen Neilson - My IBD Story Glen was diagnosed with ulcerative colitis in 2001. After experiencing severe symptoms in 2000, Glen was admitted to hospital for three months in 2001. During that time he underwent an emergency total proctocolectomy and ileostomy operation. Glen's a real adventurer, having previously served in the Armed Forces as an intelligence operator. He loves to travel and hike mountains.
Clemmie Macpherson - My IBD story Clemmie was diagnosed with ulcerative colitis aged 9 and had surgery to remove her colon aged 11. At the age of 18 she had her ileostomy reversed and a J-pouch formed. After working for several years in PR she retrained as a nutritional therapist and now works supporting people with IBD.
Jennifer Higgins - My IBD story After being diagnosed in March 2018 with ulcerative colitis Jennifer quickly had a temporary ileostomy formed. But, after her surgery, she was then re-diagnosed with Crohn's disease.
Tim Parsons - My IBD story After experiencing symptoms since 2008 Tim was diagnosed with Crohn's disease in 2012. Alongside his day job he volunteers as a voluntary Chaplain to South East Coast Ambulance Service.
Dan - My IBD Story Dan is a serving police officer diagnosed with ulcerative colitis in 2013. Recently he took the decision to have a permanent ileostomy formed.
Lucy Brightley - My IBD Story Lucy was surprised when she was diagnosed with Crohn's disease in 2000 - she thought her fatigue was due to working full-time and raising 5 children.
Tom - My IBD Story At just six-and-a-half Tom was diagnosed with Crohn's disease - but he doesn't let it stop him doing anything he enjoys!
Nigel Horwood - My IBD story Nigel has lived with the symptoms of Crohn's disease since 1977. In 2010 he had his first operation - which removed his terminal ileum and left him with a temporary ileostomy before having a reversal.
Nina Tucknott: IBD - a mum's view The mum of IBDrelief founder Seb gives her view of watching her son becoming seriously ill from ulcerative colitis.
Lorna Eliza - My IBD story After gaining weight at university Lorna became orthorexic (unhealthy obsession with eating healthy food). She then started bleeding when she went to the toilet and was diagnosed with ulcerative colitis.
Seb Tucknott - My IBD story IBDrelief founder Seb tells his story of how he went from nearly losing his colon to being in clinical remission.
Bernard Leach - My IBD story Bernard was diagnosed with ulcerative colitis in 2004. He uses a combination of medication, diet and exercise to manage his symptoms.
Alwine Jarvis - My IBD story After living with ulcerative colitis for 30 years Alwine decided to get a J-pouch in 2015.
Stephanie Jennings - My IBD story Stephanie was diagnosed with ulcerative colitis in 2015 and had a stoma formed shortly after.
Beth Kiernan - My IBD story Beth was diagnosed with ulcerative colitis in 2012 while at university. Since then she has climbed mountains and taken part in many outdoor pursuits.
Simon Stones - My IBD Story When he was 14 Simon was diagnosed with Crohn's disease. Since then he's gone on to gain a first class honours degree and is now studying for a PhD.
Simon Booth - My IBD Story Simon was diagnosed with Crohn's disease in 2014 and in 2015 had an ileocaecal resection.
Gemma Cleary - My IBD Story Gemma was diagnosed with ulcerative colitis in 2001, but in 2012 was told she actually has Crohn's disease.
Thaila Skye - My IBD Story Thaila was diagnosed with Crohn's disease in 2009 and the following year had a temporary ileostomy and mucous fistula formed. In 2016 she had her mucous fistula reversed and a permanent colostomy formed.

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