This website is owned and maintained by IBD Relief Ltd (“we” or “us”). We are responsible for the collection and proper management of any personal information you submit.
Some of the information we collect as part of the sign up process, and during the process of using the website, includes shared data and restricted data:
Anyone signing up to the website should expect that any data they provide (except restricted data) will be shared with other users of the website (including members of the general public) and IBD Relief’s partners. Examples of our partners include (but are not limited to) pharmaceutical companies, IBD charities, research institutions, medical device companies.
There are instances where both shared data and restricted data may be used. These include, but are not limited to:
Shared data provided to us is viewable by other members of the website who are signed into their account through profiles and aggregated reports. Some of this information is also available to be viewed by non-members who use the website.
There are different levels of privacy settings available to members in their account settings. These privacy settings allow users to make public different amounts of their shared data.
Members also have the option of completing surveys. These survey results are analysed and the anonymised data may be displayed on the website and/or shared/or sold to partners. Completing these surveys is completely optional.
IBDrelief is an public internet community and members accept that any information added through free text (such as in article comments or in their personal biography) or images becomes shared data.
Restricted data is not automatically shared with, sold to, or displayed for other members or partners. Instances where restricted data may be used include, but are not limited to:
We would like to send you information about our own products and services, as well as those of selected third parties. We may do this by email unless you have told us that you do not wish to be contacted in this way. We will always ask you to confirm in advance that you are happy for us to allow third parties to contact you by email.
If you would like to change any of your preferences relating to the way in which we may use your information for direct marketing, then please update your user preferences or send an email to email@example.com.
We have a system of retention periods in place to ensure that your information is only stored whilst it is required for the relevant purposes or to meet legal requirements. Where your information is no longer required, we will ensure it is disposed of in a secure manner.
You have the right to request a copy of the information that we hold about you. If you would like a copy of some or all of your personal information, please email or write to us at the address below. Please note that we may charge a small administrative fee for the provision of this information.
16-18 East Street, Shoreham-by-Sea, West Sussex, BN43 5ZE
We want to make sure that your personal information is accurate and up to date. You may ask us to correct or remove information you think is inaccurate.
By email: firstname.lastname@example.org or write to us at 16-18 East Street, Shoreham-by-Sea, West Sussex, BN43 5ZE.