The diet of paediatric IBD patients
1
About You
2
Your Diet
Do you consistently avoid specific foods, food groups or drinks?
Yes - Always
Yes - Sometimes
No
Which foods/food groups/drinks do you avoid?
Why did you choose these particular food restrictions?
Choose all that apply
My NHS gastroenterologist advised me
My NHS dietician advised me
Fellow patient experience
Read about it on social media
From my own/parents research
Noticed the foods were having a negative effect on me
Due to my religion
Due to personal/family beliefs/morals
I have improved symptoms when I don't eat these foods
Private doctor advised me
My GP advised me
Private dietician/nutritionist
If you avoid certain foods or drinks what symptoms do you get when you eat them?
If you avoid certain foods or drinks how long have you been doing so for?
Less than 1 year
1-2 years
2-4 years
More than 5 years
I don't avoid foods/food groups/drinks
If you avoid certain foods/food groups/drinks when do you follow these restrictions?
All the time
When I'm in a flare
Intermittently
When I'm in remission
I don't avoid foods/food groups/drinks
If you avoid foods or drinks what was the strongest influence for you to try these restrictions?
Choose all that apply
Hearing experiences from other patients
My NHS gastroenterologist said it would help me
My NHS dietician thought it would help me
Reading about patient experiences on social media
Reading about patient experiences on websites
Reading about patient experiences on forums
A private dietician/nutritionist thought it would help me
My family suggested I try it
I read about it helping other patients in a book
My GP thought it would help me
I don't avoid foods/food groups/drinks
If you avoid certain foods or drinks did you discuss the restrictions with anyone?
Choose all that apply
My NHS dietician
My NHS gastroenterologist
My IBD nurse
None of my NHS team
A private doctor
My GP
A private dietician/nutritionist
My family
My friends
I don't avoid foods/food groups/drinks
On average how many portions of fruit and veg do you eat a day?
None
1
2
3
4
5
More than 5
On average how much water do you drink a day?
None - I drink other drinks
1 glass
2 glasses
3 glasses
4 glasses
5 glasses
More than 5 glasses
On average how many main meals do you eat a day?
None - I'm on a liquid diet
None - I only snack
1
2
3
More than 3
On average how many snacks do you eat a day?
None - I'm on a liquid diet
None
1
2
3
4
More than 4
Do you have any foods or drinks you consider to be 'safe' and will have however you are feeling? What are these?
How often do you eat your safe foods?
Always
Frequently
Sometimes
Only when in a flare
When I feel like I might be approaching a flare
Not applicable
Do you get anxious about eating?
Yes
Sometimes
No
Do you find some foods easier to eat if they are prepared in a certain way? Such as boiling vegetables or juicing them? Give examples
Do you take any nutritional supplements? If so, what do you take?
Do you have any known vitamin or mineral deficiencies?
Choose all that apply
No
Iron
Vitamin B
Vitamin D
Magnesium
Calcium
Finish
3
Thank You
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